A 501(C)(3) non-profit organization

SPonsored by miller lite

International Rett Syndrome Foundation

International Rett Syndrome Foundation

Rett syndrome is a rare genetic neurological disorder that leads to severe impairments, affecting nearly every aspect of life. Rett particularly affects speech, purposeful hand use, and coordination, leaving individuals understanding more than they can communicate. Caused by a gene mutation, Rett is first recognized in infancy and occurs primarily in girls and more rarely in boys. Rett syndrome occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements. Rett syndrome is usually recognized in children between 6 to 18 months as they begin to miss developmental milestones or lose abilities they had gained. Rett syndrome is caused by mutations on the X chromosome on a gene called MECP2. There are more than 900 different mutations found on the MECP2 gene. Most of these mutations are found in eight different “hot spots.” Rett syndrome is not a degenerative disorder with individuals living to middle age or beyond. Rett syndrome occurs worldwide in 1 of every 10,000 female births, and is even rarer in boys. Rett syndrome can present with a wide range of disability ranging from mild to severe. The course and severity of Rett syndrome is determined by the location, type and severity of the mutation and X-inactivation.

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The Hoan Bridge lights have two main public viewing spots:
1) Milwaukee Riverfront Boat Launch at 600 S. Water Street
2) Riverwalk on East Erie Street right before the Milwaukee Pierhead Light.

There are also several local establishments with views of the Hoan Bridge lights:
1) Indeed Brewing Rooftop inside the Eagleknit building 

2) Cooperage/Boone + Crockett

3) Milwaukee Sail Loft

4) 2A Wine Merchants

5) The Outsider rooftop located in Journeyman Hotel

6) Blu at the Pfister (small corner view)

  1. Visit lightthehoan.com.

  2. Click the Dedicate a Bulb page.

  3. Select your donation amount. Be sure to check out all of the Hoan gear that is available at different donation levels!

  4. Checkout and fill out your shipping information and billing information. Be sure to follow the steps on the checkout page to submit your dedication!

  5. Review your dedication to make sure everything is correct.

  6. Receive your order confirmation and printable dedication certificate via email. 

  7. View your dedications on the Find Your Bulb page. Please allow 2-3 hours after you’ve dedicated for your dedication to appear on the page. 

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Dedications can be viewed online on our website, under the Find Your Bulb page. Please allow 2-3 hours after you’ve submitted, for your dedication to appear on the page.

To view the upcoming schedule for the Hoan Bridge Lights, please visit our regularly updated Light Schedule page.

Light the Hoan, Inc. is a 501(c)(3) organization and donations to it are tax deductible to the extent allowed by law.

 
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